{
  "id": 9984,
  "url": "https://doi.org/10.3389/fmed.2025.1699941",
  "title": "The European Health Data Space: an opportunity to strengthen citizen rights and engage citizens in health data governance",
  "summary": "Introduction: The European Health Data Space (EHDS), the European Union's new regulatory framework for health data use and reuse, will have important implications for citizens across the Union. While the regulation aims to empower citizens in the primary use of their health data-such as by giving them access to their electronic health records-their role in the secondary use of health data remains less clearly defined. Methods: To explore this, we interviewed health data experts across 23 Europea",
  "authors": "Patricia Cruz, Teodora Lalova-Spinks, Mahsa Shabani",
  "category": "research",
  "topics": "regulation,healthcare",
  "orgs": null,
  "regions": "eu",
  "published_at": "2026-01-20T00:00:00.000Z",
  "fetched_at": "2026-07-14T16:34:04.102Z",
  "source_slug": "openalex",
  "source_name": "OpenAlex",
  "source_homepage": "https://openalex.org",
  "ethics_ai_record_url": "https://ethics.ai/record/9984",
  "original_url": "https://doi.org/10.3389/fmed.2025.1699941",
  "evidence_status": "source-only",
  "attribution": "via ethics.ai"
}