{
  "id": 13323,
  "url": "https://retractionwatch.com/2026/07/23/exclusive-death-gene-editing-trial-china-nature-science-investigation",
  "title": "Exclusive: A couple paid more than $800,000 for a gene-editing therapy for their daughter. She died, and it wasn’t made public",
  "summary": "An investigation by Science and Retraction Watch has uncovered details about a clinical trial that resulted in the death of its sole patient: a 6-year-old girl with a rare genetic mutation affecting her cognitive development. Her death has never been reported publicly, even though the medical team published its preclinical work in Nature earlier this … Continue reading Exclusive: A couple paid more than $800,000 for a gene-editing therapy for their daughter. She died, and it wasn’t made public",
  "authors": "Retraction Watch Staff",
  "category": "news",
  "topics": "healthcare,finance-investment,biotech",
  "orgs": null,
  "regions": null,
  "published_at": "2026-07-23T18:00:00.000Z",
  "fetched_at": "2026-07-25T05:10:48.796Z",
  "source_slug": "x-retraction-watch",
  "source_name": "Retraction Watch",
  "source_homepage": "https://retractionwatch.com",
  "ethics_ai_record_url": "https://ethics.ai/record/13323",
  "original_url": "https://retractionwatch.com/2026/07/23/exclusive-death-gene-editing-trial-china-nature-science-investigation",
  "evidence_status": "source-only",
  "attribution": "via ethics.ai"
}